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Rob

Hometown: Bergenfield, NJ (pre-1979 ) & Bennington, VT
Positive Since: October 15, 1985
Relationship Status: Single
Age: 44
Favorite Book: “Dune” by Frank Herbert

As the eldest of four brothers, I was born in Cobleskill, NY in late December back in ‘63. When I was three months old, my family moved to Bergenfield, New Jersey (a suburb of New York City) where I was raised in a three family house with my mother, brother, grandparents, three aunts, uncle and two cousins. My grandmother was the matriarch of the family. She more than made up for my lack of a father by being my second mother and parent since my parents divorced when I was about three. My mother’s younger sisters also helped raise me.

My early childhood was filled with large family dinners and holidays spent together. I look back on these years with great appreciation for the love that was shared and the importance of family that my grandmother instilled in all of us. My mother remarried when I was ten to a man who was, ironically, as homophobic as my biological father. Throughout my childhood, I helped my mother take care of my younger brothers and assisted her in carrying out the household chores. I started working when I was eleven by taking on a paper route and bagging groceries at a local store. I was also very active musically as a child, playing bassoon and piano from the age of nine onwards. I attended two performing arts programs during my freshman year of high school, in both Ft. Lauderdale and Manhattan, and then moved to Bennington, Vermont with my mother’s clan, where I finished my last three years of high school.

I took standard college preparatory courses during high school and, after much vacillation between music and psychology during my senior year, I decided to pursue a degree in music. I attended Westminster Choir College in Princeton, New Jersey and graduated in May 1986 with a Bachelor of Music degree in Music Education and Organ. I also became certified to teach K-12 music in New Jersey.

I was a senior in college when I tested positive for HIV in October 1985. I had gone clubbing in Manhattan with a guy from school that I’d been messing around with and we didn’t play it safe. About three days later, I developed a high fever and went to the health clinic at Princeton University where I was told to get tested for HIV because I had all the symptoms of mono but the throat culture came back negative.


    

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Karen, Best Friend

My friendship with Rob helps him cope with the stress that can come from living with HIV. I call him out when he's not taking good care of himself and give him a kick in the butt to get him back on track.


    


    

It's All About the Connection

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How has your sex life changed since you became positive?

My sex life has changed in so many ways since becoming HIV positive in 1985 but most of these changes have affected everyone because HIV changed the way we date and have sex. I didn't have sex for quite awhile after sero-converting and, once I resumed dating and having sex, I made sure to use condoms every time.


    

Blessed & Grateful

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How has your HIV status affected your family members and friends?

I believe my being HIV positive has made most of my family and all of my friends more compassionate and understanding of people with HIV, or any major illness for that matter.


    

Introducing Tina Turnaround

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The crystal meth epidemic has been a major cause of new HIV infections in recent years, and it also continues to wreck havoc on the health of those already positive. With the right support and financial backing (i.e., an organization such as the Elton John AIDS Fund), I would start a national detox treatment and networking agency called Tina Turnaround, a concept that I first conceived some seven years ago. “ Tina” is the main slang for crystal meth among gay men and Tina Turner has long been an icon in the gay community.


    

This Condition

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Having HIV has resulted in my paying far more co-pays for medical visits, prescriptions and lab work over the years than if I didn't have this condition. The most significant factor was my inability to work overtime or have side jobs due to being exhausted from my full-time job, especially from 1995 to 2000, when I first started taking anti-viral medications to treat my HIV. During those years, I'd go to work, come home, cook dinner, feed my cat and pass out watching TV every night because my energy for the day would be spent by 7 p.m.


    

HIV Long-Term Survivor Support Group

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I've led the HIV Long-Term Survivor support group at JRI in Boston for four years now. The members of this group support each other in the truest sense of the word. We discuss daily quality of life issues which include disclosure concerns, medication compliance, medication side effects and holistic approaches for reducing them, and strengthening the immune system.


    
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